How Jaxon, the baby given days to live when he was born with most of his skull missing, has defied the odds – and is celebrating his first birthday

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jax strong
Daily Mail: Born with most of his brain and skull missing, baby Jaxon Emmett Buell was not expected to live. In fact his parents had been told to abort him when doctors discovered his condition. But he has defied all odds – and now he has just celebrated his first birthday.
Baby Jaxon’s devout Christian parents, Brandon and Brittany Buell, were told by doctors that he had an extreme brain malformation, which meant he would probably not survive the pregnancy. But Jax Strong – a nickname he has earned on social media – is now one years old. His inspirational story has captivated families across the U.S., with nearly 90,000 people ‘liking’ his page on Facebook and 18,000 people sharing his story.
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Jaxon was diagnosed as having Anencephaly, a neural tube birth defect in which a child is born without parts of the brain and skull, but doctors were still unsure of how severe his condition would be. About 1 in 4,859 babies in the United States will be born with Anencephaly and usually die shortly after birth, according to the Center for Disease Control and Prevention.
30-year-old Brandon, said: ‘After our second ultrasound at 17 weeks, when we found out he was a boy, we knew something was up when the ultrasound technician went towards his head and went very quiet.’
‘Brittany got the call the next day from the doctors saying there was a concern with the MRI results. She was in tears and told me there was an issue with the baby. Of course, I lost it at work so they sent me home and the rest of the day was a blur truly.’
For the next few weeks, the anxious couple were transferred between doctors and given five possible conditions of what it could be. Spina bifida, Dandy-walker syndrome and Joubert syndrome were all possibilities. Doctors gave them the option to terminate the pregnancy at 23 weeks but the young couple, who are against abortion, believed it was not their decision to make.
Brandon, who is an assistant to the CEO of a small community bank in Florida, said: ‘We went home that night thinking if you are telling us to abort, we would never know what Jaxon could have been, if he could have survived.’ ‘Who are we to decide? We were given a child, we are given a chance and we have to be his voice. We did everything we could to give him a fighting chance and all he’s done since being born is fight right back.’
Jaxon’s 27-year-old mother, said: ‘I was devastated. It was heart breaking because something I always wanted my whole life was happening, but then I was told there was a possibility it might be a stillborn. ‘It took all the joy away from me. The happiness that normal women have when they are pregnant – I had none of that.’
The miracle baby survived the pregnancy and was born by caesarian section on August 27, 2014 weighing four pounds. He spent his first three weeks connected to multiple tubes in a neonatal intensive-care unit in Winnie Palmer Hospital, Florida, as brain surgeons tried to understand his condition.
Brandon said: ‘It was very emotional. I remember holding him on day two and listening to the doctors say my son would probably never walk, never talk, never know when he’s hungry, or never hear or see. They really did not expect him to make it.’
Following multiple hospital visits and a two-month scare of multiple seizures, inconsolable screaming, and feeding tube issues, Jaxon was taken to the emergency room at Boston Children’s Hospital, a top U.S. hospital for pediatric neurology, in August. They went in with the unknown and came out with a burst of hope: a true diagnosis – Microhydranencephaly – and new medicine that has since eased Jaxon’s condition and made him a lot happier.
Yet Brittany and Brandon still wake up everyday knowing the reality they face – that Jaxon may not be here tomorrow. Brittany said: ‘It is always in the back of my mind. I’m very aware that today maybe his last day. I’m aware tomorrow he may not be here. I try to stay positive 99 per cent of the time but there is that 1 per cent because I know the reality of the situation – that we’re probably going to outlive him.’
Brandon’s work colleagues set up a GoFundMe page when Jaxon was born to help out the family with the pricey medication and extra expenses. Nearly $55,000 has been raised by 1,181 donors since then and the outpouring of support is growing day by day. The couple, who are living on only one salary, described the support as ‘incredible’ and said they ‘never dreamed that this would happen.’
Jaxon’s father said: ‘He thrives with his mom, that one-to-one stimulation that no other therapy can give. If we can keep Brittany at home, giving him that 24/7 care is truly priceless and that’s what his account allows us to do.’
Brittany said: ‘It’s all been so overwhelming in a positive way because we can’t go anywhere without someone stopping us, and saying, ‘hey, what’s your story?’ or they would have seen his picture and say, ‘hey, look it’s Jax Strong!’ – his nickname! It’s truly incredible the amount of people he has had an impact on.’
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0 responses to “How Jaxon, the baby given days to live when he was born with most of his skull missing, has defied the odds – and is celebrating his first birthday

  1. Abortion is NEVER the answer. PERIOD.

     
  2. God bless Jason and his heroic parents, Brandon and Brittany Buell. I hope the Buells work hard and save because they will need a lot of $ to provide for Jason, especially if he outlives his parents.

     
  3. such an amazing little boy and family…each day is a blessing

     
  4. How the abortionists, and their champions must hate this! God’s love, immeasurable and overflowing, in this precious child, his family, and all those who are touched by his life. What a message to the pro-death crowd…GOTCHA!!!!!!

     
    • “Gotcha”? Wow, you’re completely deluded. How on earth do you figure that a deformed child is somehow a display of “god’s love”? That’s pretty sick. You religious people always think that everything, good or bad, is somehow a display of “god’s love.” Your imaginary god is just the excuse you use to explain that which you cannot explain. By the way, I am a pro-choice supporter and no, I did not “hate” this story. And no, this story did not somehow sway me from believing that a person has a right to choose what goes on inside of their own body. Why on earth would it? One has nothing to do with the other. Whether a potential birth would result in a healthy child or an unhealthy child is beside the point, it still doesn’t mean that a women should be made to go through with the pregnancy. This is the whole point that you have missed entirely. I’m sorry for you that this story does not have the effect that you wish it to have on people like me and that you didn’t actually achieve any sort of “triumph” there. The only thing this story made me feel was sorry for this poor family and ultimately for this poor little baby who got dealt a really shitty hand. But again, none of this has anything to do with a person’s right to choose.

       
      • Kojitachibana in Brooklyn, NY:
        Reading your comment, I can’t help but think: “What if Kojitachibana’s mother had exercised her right to ‘choose’? The world would be spared this supercilious self-satisfied comment.”

         
      • The only thing this comment made me feel was sorry for this poor person and ultimately for his/her poor family. With all your supreme knowledge, family gatherings with you must be soooo much fun, not.

         
  5. Praise God!!!

     
  6. Thanks to the devotion, love, and deep concern for their little infant, Jax has been given the opportunity to experience life and the love of so many people. He is here for a purpose. Researchers may learn volumes about various neurological disorders from this child. The parents have been given the gift of knowing him and loving him. He was NOT a throwaway infant, left to die on a cold steel table by folks who make money by killing him, and a mother who did not want him (for whatever reason) and allowed him to be murdered……..without even giving him a chance at life. Very sad how our country has been taking a downward, selfish turn for the past 50 years.

     

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