The parents must let their child “die with dignity.”
From Daily Mail: Members of Charlie Gard’s army of supporters across the globe have expressed their grief as his parents prepare for his life support to be turned off today (Friday).
People all over the world have been using the hashtag #JeSuisCharlieGard’ to celebrate the ten-month-old’s life before it is ended by his doctors later.
Connie Yates and Chris Gard are at their son’s bedside in Great Ormond Street Hospital today as he enters his final hours.
But they continue to receive unwavering support from thousands who donated £1.4million towards the treatment denied to him.
His parents are believed to be Catholic and their unwell son was photographed recently clutching a St. Jude pendant – the patron saint of lost causes.
As a result his plight has had mass press coverage in Italy and even reached the Vatican where Pope Francis was asked to pray for Charlie. Archbishop Vincenzo Paglia, head of the Pope’s Pontifical Academy for Life was quoted as saying: ‘We should never act with the deliberate intention to end a human life, including the removal of nutrition and hydration, so that death might be achieved’.
Catholic groups across called the decision to end Charlie’s care ‘heartbreaking’ and ‘draconian’ with vigils held for the little British boy in various Italian cities last night.
And in Britain others have taken to Twitter to vent their anger at Great Ormond Street with some promising to end their charitable donations over their treatment of Charlie.
Connie Yates and Chris Gard told MailOnline yesterday that his ‘heartless’ doctors who have refused to let him come home to die today.
The couple’s ‘final wish’ for Charlie has been blocked and his mother Connie said in a video for MailOnline: ‘We promised our little boy every single day that we would take him home’.
Mr. Gard added: ‘We want to give him a bath at home, put him in a cot which he has never slept in but we are now being denied that. We know what day our son is going to die but don’t get a say in how that will happen.’
They have also released a heartbreaking photograph of them lying with Charlie between them and said they were ‘spending our last precious hours with our baby boy’.
And they also the so-called ‘Charlie’s Army’ who donated £1.4million for the US treatment being denied to him and told them: ‘Charlie will die tomorrow knowing that he was loved by thousands – thank you to everyone for all your support’.
The couple have also accused Great Ormond Street of trying to ‘rush’ his death despite promises they would have the time they needed to say goodbye to their only son.
Connie Yates and Chris Gard had battled to take their son, who has a rare genetic condition, to undergo experimental treatment in the US. But earlier this week they reached the very end of their legal battle after the European Court of Human Rights backed British doctors who said it would be kinder to let the ten month old die.
In a heartbreaking video taken in the hospital room where they have lived since their son was admitted to hospital last year, the couple open their hearts speaking for the first time since they were told the European Court verdict.
Ms. Yates said: ‘We’ve been talking about what palliative care meant. One option was to let Charlie go home to die. We chose to take Charlie home to die. That is our last wish. We promised our little boy every single day that we would take him home.’
His father Chris, 32, said: ‘Our parental rights have been stripped away. We can’t even take our own son home to die. We’ve been denied that. Our final wish if it all went against us can we take our little boy home to die and we are not allowed. They even said no to a hospice.‘
The couple, who have previously lost battles in the High Court, Court of Appeal and Supreme Court, claim they also asked doctors to allow them a final weekend with Charlie but say this request has been denied. ‘We begged them to give us the weekend,’ Ms Yates said, ‘Friends and family wanted to come and see Charlie for the last time. But now there isn’t even time for that. Doctors said they would not rush to turn off his ventilator but we are being rushed. Not only are we not allowed to take our son to an expert hospital to save his life, we also can’t choose how or when our son dies.‘
The couple say they also offered to pay privately for their son to be transported on a mobile ventilator to their flat in Bedfond, southwest London, in order to spend a few last precious hours with him.
Connie Yates, 31, has indicated that the £1.3m raised for Charlie will be used to save other children and a foundation could be set up in his name. Miss Yates said in April: ‘A few people have asked us what we’ll do if we don’t win the court case. We have thought long and hard about it and we would set up a charity for mitochondrial depletion syndromes (there are others that are more common than Charlie’s specific gene)’, she said in a statement which was posted on the website but has now been taken down.
‘We’d like to save other babies and children because these medications have been proven to work and we honestly have so much belief in them. If Charlie doesn’t get this chance, we will make sure that other innocent babies and children will be saved. We would like some of it to go to research at the specific hospital that is willing to treat Charlie, and the rest will be available to help other families to get the medication that their children desperately need. We hope that you can all support us in making treatments available so that nobody else ever has to go through what we have.‘
GoFundMe said officials would also have discussions with Charlie’s parents about what would happen to money raised for treatment.
But Connie said: ‘Even though we offered to pay for him to be transported back home, doctors have now told us he must die in hospital. We offered to pay for transport privately but that’s not an option.’
A spokesperson for Great Ormond Street Hospital said: ‘As with all of our patients, we are not able to and nor will we discuss these specific details of care. This is a very distressing situation for Charlie’s parents and all the staff involved and our focus remains with them.’
Read the rest of the story here.