The future for children under Obamacare?

Now sick babies go on death pathway

DailyMail: Sick children are being discharged from NHS hospitals to die at home or in hospices on controversial ‘death pathways’. Until now, end of life regime the Liverpool Care Pathway (LCP) was thought to have involved only elderly and terminally-ill adults. But the Mail can reveal the practice of withdrawing food and fluid by tube is being used on young patients as well as severely disabled newborn babies.

One doctor has admitted starving and dehydrating ten babies to death in the neonatal unit of one hospital alone. Writing in a leading medical journal, the physician revealed the process can take an average of ten days during which a  baby becomes ‘smaller and shrunken’.

The LCP – on which 130,000 elderly and terminally-ill adult patients die each year – is now the subject of an independent inquiry ordered by ministers. The investigation, which will include child patients, will look at whether cash payments to hospitals to hit death pathway targets have influenced doctors’ decisions.

Medical critics of the LCP insist it is impossible to say when a patient will die and as a result the LCP death becomes a self-fulfilling prophecy. They say it is a form of euthanasia, used to clear hospital beds and save the NHS money.

The use of end of life care methods on disabled newborn babies was revealed in the doctors’ bible, the British Medical Journal. 

Earlier this month, an un-named doctor wrote of the agony of watching the protracted deaths of babies. The doctor described one case of a baby born with ‘a lengthy list of unexpected congenital anomalies’, whose parents agreed to put it on the pathway.

The doctor wrote: ‘They wish for their child to die quickly once the feeding and fluids are stopped. They wish for pneumonia. They wish for no suffering. They wish for no visible changes to their precious baby. Their wishes, however, are not consistent with my experience. Survival is often much longer than most physicians think; reflecting on my previous patients, the median time from withdrawal of hydration to death was ten days. Parents and care teams are unprepared for the sometimes severe changes that they will witness in the child’s physical appearance as severe dehydration ensues.’

The use of end of life care methods on disabled newborn babies was revealed in the doctors’ bible, the British Medical Journal. ‘I know, as they cannot, the unique horror of witnessing a child become smaller and shrunken, as the only route out of a life that has become excruciating to the patient or to the parents who love their baby.’ According to the BMJ article, the doctor involved had presided over ten such deaths in just one hospital neonatal unit.

In a response to the article, Dr Laura de Rooy, a consultant neonatologist at St. George’s Hospital NHS Trust in London writing on the BMJ website, said: ‘It is a huge supposition to think they do not feel hunger or thirst.’

The LCP for children has been developed in the North West, where the LCP itself was pioneered in the 1990s. It involves the discharge to home or to a hospice of children who are given a document detailing their ‘end of life’ care.

One seen by the Mail, called ‘Liverpool Pathway for the Dying Child’ is issued by the Royal Liverpool Children’s NHS Trust in conjunction with the flagship children’s hospital Alder Hey. It includes tick boxes, filled out by hospital doctors, on medicines, nutrients and fluids to be stopped.  

The LCP was devised by the Marie Curie Palliative Care Institute in Liverpool for care of dying adult patients more than a decade ago. It has since been developed, with paediatric staff at Alder Hey Hospital, to cover children. Parents have to agree to their child going on the death pathway, often being told by doctors it is in the child’s ‘best interests’ because their survival is ‘futile’.

Bernadette Lloyd, a hospice paediatric nurse, has written to the Cabinet Office and the Department of Health to criticise the use of death pathways for children. She said: ‘The parents feel coerced, at a very traumatic time, into agreeing that this is correct for their child whom they are told by doctors has only has a few days to live. It is very difficult to predict death. I have seen a “reasonable” number of children recover after being taken off the pathway. ‘I have also seen children die in terrible thirst because fluids are withdrawn from them until they die.

I witnessed a 14 year-old boy with cancer die with his tongue stuck to the roof of his mouth when doctors refused to give him liquids by tube. His death was agonising for him, and for us nurses to watch. This is euthanasia by the backdoor.’

Alder Hey confirmed that children and babies are discharged for LCP end of life care ‘after all possible reversible causes for the patient’s condition are considered’. ‘There is a care pathway to enable a dying child to be supported by the local medical and nursing teams in the community, in line with the wishes of the child patients, where appropriate, and always their parents or carers.’ Alder Hey said children were not put on the LCP within the hospital itself.

Teresa Lynch, of protest group Medical Ethics Alliance, said: ‘There are big questions to be answered about how our sick children are dying.’

A Department of Health spokesman said: ‘End of life care for children must meet the highest professional and clinical standards, and the specific needs of children at the end of their life. ‘Staff must always communicate with the patient and the patient’s family, and involve them in all aspects of decision making.’

I certainly hope children here in America are not going to be subject to this “pathway” once Obamacare is implemented. Heartbreaking.

DCG

7 responses to “The future for children under Obamacare?

  1. This is cruelty on a scale that leaves one breathless. Only heartless power-mad bureaucrats in a heartless socialist country can do this. Is this our future under Obamacare? I don’t doubt it for a minute, given then-Illinois state senator Barack Obama voting THREE times against the Born Alive Infants Protection Act, thereby consigning babies who survive a late-term abortion to die from starvation and neglect.

    http://fellowshipofminds.wordpress.com/2012/11/06/obama-is-evil/

  2. Every day i feel like I’m living in the “Twilight Zone” I keep expecting to see Rod Steiger smoking a cigarette and smiling

  3. All the while , esteemed members of Parliament and of our Congress devote their time and energies making speeches to end torture and/or imprisonment of terrorists held in Gitmo. There will come a day of reckoning for these sick socialist hypocrits.

  4. While a majority still re-elected Obama, most still favor tearing his health care apart. This is what we’re coming to! What sort of civilization do we have? Speak up folks!

  5. Post-birth abortion… watch, left/libtards will probably call it that.

  6. Obama/Herod. Food for worms.

  7. Damien is a perfect example of what Americans have to look forward to if Obama Care goes into effect.

    Who, you might ask, is Damien Henzell? Let me tell you about Damien. He is a beautiful 6 year old child who suffers from Atypical Haemolytic Uraemic Syndrome (aHUS), a rare disease that leads to kidney failure. He is also a member of my extended family in the UK. I am an American who not only has a British husband and daughter-in-law, but I also lived in the UK for 8 years and experienced first hand the nightmares of a government controlled health care system.

    We almost lost Damien numerous times during his young life until he was put on the drug Eculizumab, which began to make a huge difference in his life. For the first time he was able to run, play and enjoy life like any other child.

    Now, Damiens treatment with Eculizumab has been stopped because his Primary Care Trust has refused to fund it. The funding for care with this medication has also been refused to other children who are not fortunate enough to live in wealthier, better funded post codes. One of these other children is a 2 year old
    little girl.

    I have managed to get radio air time to put out a plea for Damien, and have also gathered almost 500 signatures to go to the Ministers of Health. We only need 66 more. Please, PLEASE sign! It doesn’t matter if you live in the USA and not the UK. The power of the petition is in the numbers of those from all around the
    world who believe this to be a cruel injustice to a child.

    Below are links to the petition and the news article…

    https://www.change.org/en-GB/petitions/health-ministers-stop-funding-for-a-six-y\

    ear-old-boy-s-medication

    http://www.chroniclelive.co.uk/communities/benwell-scotswood-elswick/2013/02/01/\

    health-ministers-snub-elswick-mum-s-plea-for-her-son-72703-32725126/

    Thank you in advance,

    Cindy

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